Pint.
I have an appointment today with Pint's Psychiatric prescriber. Therein lies a dilemma.
She has been, of late, taking little forays into the beginnings of psychosis. Not in a big way, but in a little way that seems to be progressing. Very little things which I have recently discussed with her counselor. Little things that are bothering me.
Her absolute insistence that I be on that old ladder every single night without fail, for however long it takes her to fall asleep. That I can pretty much handle, and that is really not a psychosis type thingy. That is more of an, um...insecurity issue.
But, the bugs. And the coughing. And the don't touch my food. And the hysterics over nothing.
I thought those were just weird.
But, the counselor says that is not just weird behavior. They are the beginnings of psychosis.
And that, is scary.
She doesn't go into the bathroom without checking for bugs. There are times a night, but not every night, (only when she is really tired or had a very bad day) when I have to strip the entire bed to check for bugs. She no longer goes outside to play because of bugs.
Now, every night, as she is falling asleep, she constantly coughs and clears her throat. There is nothing wrong with her. She has a drink. She has no fever. She is not having allergies. Yet she is constantly, and I do mean constantly clearing her throat. Once she falls asleep, the coughing and gagging stops.
The other morning, I poured her bowl of cereal. Normally, since they also eat breakfast at school, I don't pour very much cereal into their little corell ware bowls. About ½ full is what they get. Why waste it? That morning, I either wasn't paying attention, or wasn't awake enough, and I poured a full bowl. Not even thinking, I reached my hand into the bowl (my hands had just been washed and dried) and picked up a handful of cereal and returned it to the box. Gross maybe, but it is probably done lots and lots by busy mom's all over the US and wherever else they have boxed cereal.
She totally tweaked. I mean total hysterics. Crying and screaming and snot running down her face tweak. “you touched my food with your fingers....”
I explained, that I touch her food all the time, being as how I am the PREPARER of her food. Didn't matter.
So, I mentioned these things to her counselor two days ago. And, she is VERY worried.
The dicey part comes in now. She is on ADHD medication, the Daytrana patch. And,.....drum roll....ominous music.....
One of the side effects of ADHD medication is occasional psychosis.
Damn.
Now, I would like very much to take her off the medication. But honestly, she cannot function without it. Imagine a roomful of bouncing, verbal diarrhea, moving, mobile, hysterical kids hanging off your elbow. Then condense them down to ONE kid doing it all herself.
That is my Pint with no medication.
With her meds, she can MOSTLY track. Without it, not at all. With them she is an A student, without them, she would be in the principals office daily.
Even with the meds, she has bad days at school. This is a straight A student, who occasionally (okay, ONE time) gets a B. You can tell her bad days, because she just simply forgets to do work. Like she will do the front of page 1, and the front of page 3 and totally miss page 2. she normally gets over 100 on every assignment. The occasional difference is somedays, she will get a 93 instead of 100 or above. Not a big deal. Still an A kid. I don't personally give a dang whether or not she is a d student or an a student. Each to his/her own potential
So I am thinking that this guy will change her from the patch which I like, but which may not be working as well as it used to, to a pill.
I hate this. I hate medicating my child. I hate giving her something that changes her reality.
And yes, for all the naysayers out there, we tried organic foods, cutting out sugar, cutting out proteins, cutting out carbohydrates, cutting out food coloring (and THAT was hard), all the different diets and behavior systems out there to control ADHD.
There is only one word to describe how I feel right now.
Shit.
posted by: LadyG (reply)
post date: 01.25.08 (9:31 am)
I hate to hear about poor pint and I know that this is hard on you but it does not sound like beginning psychosis but rather a side effect of the medication that she is on. perhaps they can keep her on the medication but cut the dosage a little.
Good luck.
posted by: mimi (reply)
post date: 01.25.08 (1:16 pm)
most of the time, as you are well aware, i am certain, some meds work for some and some others work for others...and sometimes the body rebels and something has to chage. i for one, had been on a certain med to make me feel better for about 10 years...but i knew i should feel better than i did and i hated the "withdrawl" feeling if i was just a little late with the dosage....i weaned off, changed meds and i have accumulated leave time that i haven't had in 5 years! so my point is, do what you have to do to help this child have a "normal life" as possible...change...whatever needs changing. xoxoxox
posted by: PirateGirl (reply)
post date: 01.25.08 (3:46 pm)
wow - first of all - (((hugs)))) to you...
next - I think LadyG and mimi are right - and it is most likely a side effect to to pint's current medication - take your time and find what works for her - ( I was thinking OCD when you talked about the bugs and the touching of food - maybe a symptom from the current meds too ) - I'm glad you and the doc are on top of things.
- Hang in there, prayers for you and the doc and most of all, pint :)
posted by: PastorDave (reply)
post date: 01.25.08 (4:47 pm)
As a general statistic, I am sure that too many kids take too much medication, and mostly for the ease of the teachers/parents. However, with any individual child, the only one with the right to make the final decision is the parent. Sounds to me like you have studied this matter carefully, tried alternatives, and so you've done your best. Maybe, a careful consideration might lead you and your doctors to an alternative medication that would not have such harmful side effects. I hope and pray you find it. When it is all said and done, that little girl is going to grow up to make you proud. And these many complications of life, which you are persistently loving her through, will serve to make her uniquely sensitive and useful to her fellow man. I want Pint to meet my Skylar one day.
posted by: fractalmom (reply)
post date: 01.27.08 (4:50 pm)
Reply to: LadyG
actually, the meds she is on have the least amount of side effects. it is basically ritalin in a patch form, and is only good for 9 hours, the rest of them are 12 hour or longer...and hers is a low dose. they dont' believe it is from the meds. i am not sure if i believe it is from ocd..or just situational. we shall see.. thanks
posted by: fractalmom (reply)
post date: 01.27.08 (4:52 pm)
Reply to: mimi
i did talk to him about changing her..he wants to keep her on it for now, (see above comment to lady g)because primarily, it is a very safe and known drug which has been used for well over 30 years...like he says, alot of the newer drugs they don't really know the side effects over time...
i do like his reticence, and appreciate that in a prescriber
posted by: fractalmom (reply)
post date: 01.27.08 (4:53 pm)
Reply to: PirateGirl
thanks PG....i can always use the blessings and prayers...
posted by: fractalmom (reply)
post date: 01.27.08 (4:56 pm)
Reply to: PastorDave
thanks PD ! gosh, i think all the time of some of my friends who are raising grands with MANY serious problems, and then i realize how lucky i am....adhd and mild obsessive tendencies is a walk in the park comparitively speaking. still, i do hate medicating her (although i keep that to myself, not sharing that thought with her at all - we treat it like Pappy's diabetes..this part of your body doesn't work right, we take this medicine to compensate for that), but it is what it is after all. and i too think she will grow up special and do something LOL.
posted by: sebastianjoshua (reply)
post date: 01.27.08 (5:13 pm)
hmmm... i'm not quite understand but i know that u sad and terrible right now
all i can offer you is my prayer, may GOD gives you some strength to handle it... amen
posted by: fractalmom (reply)
post date: 01.28.08 (5:47 am)
thank you sebastianjoshua...
posted by: PirateGirl (reply)
post date: 01.28.08 (9:43 am)
Reply to: fractalmom
- Got plenty prayers here, - I'll keep 'em coming! ;)
posted by: fractalmom (reply)
post date: 01.29.08 (5:07 am)
Reply to: joliefille
i wouldn't worry. although it is certainly possible, you have to remember, these kids were both exposed to numerous drugs in the womb by my daughter. with Pint, she dropped acid when she was 3 weeks pregnant. i have always thought that had one hell of a lot to do with it. then, for the kids first 6 years, even though Pint always lived with me, unfortunately, so did her mother...so she was exposed to her mother and the effects of her using heroin. that would be responsbile for the emotional shit.
most normal people with normal lives have normal kids. well, at least the odds are statistically in your favor that way. the way my kids were exposed by their mom significantly lowered their odds.
posted by: ammegan (reply)
post date: 01.29.08 (7:16 am)
sorry fractalmom, I have several students like pint too and they drive me up the wall...Nevertheless, I'll keep you in my prayers...cheers! ;)
posted by: fractalmom (reply)
post date: 01.29.08 (11:06 am)
Reply to: ammegan
thanks aimee. i cannot even imagine teaching a whole room full of Pint's LOL. she is a wonderful child, bright, vivacious, brilliant and funny, with a serious side. but she can be challenging...and so can 1/2 pint, who is just 5. they keep me on my toes.
